Last Thursday, I had a friend mention that I seemed very "off." This bothered me. I know I've been having a very hard time coming up with words. I've had tingling in my face and MAJOR symptoms POTS related. I got to where I couldn't bend over at all without getting sick within seconds. I felt almost manic. I was feeling much worse, but I didn't think others could tell.
Because I'm on so many of the epilepsy pages for my husband, I saw someone post they were having horrible side effects from Topomax. She said she was having a really hard time coming up with words. That did it! I had been put on Topomax the beginning of January for the headaches. I didn't really want to go on a seizure med just for headaches. Especially when I feel they are more related to cortisol than the POTS crap. My husband has been on so may and they all have horrible side effects. Unless they are for seizures, I'm not sure I'm okay with prescribing them. So I decided to stop in that night. I took all the pills out of my organizer and haven't looked back.
Today is the first day I haven't had at least a mild headache. It's been the same as it was before. Mild headache and stiff/sore neck. But that's better than feeling like you are going insane, I guess. My capacity to type has returned. I'm able to think clearly. My heart rate hasn't been racing quite so high. I've also not had the weird tiredness in my arms and jaw. It can sometimes take those meds a while to fully leave one's system. I'll report back in a few days.
I'm still very upset with my POTS doctor, though. I'm going to write it here in case anyone googles this. Juan Figueroa at Mayo Jacksonville. I was calling and telling him all these symptoms and he suggested I see my General Practitioner. Crock!! As a neurologist, he should have known I was having a reaction, or at least a possible reaction, to the medication he put me on. I'm disappointed at how he blew me off. I'm going to definitely tell him this when I see him on March 19th.
He did schedule me to have all the testing repeated. I almost want to go back on the Topomax before I go down there so he can see what it did to me. I want it to completely screw with all my tests. What an ass. I would do this if I weren't scared the med could do permanent damage. Ugh!
Because I'm on so many of the epilepsy pages for my husband, I saw someone post they were having horrible side effects from Topomax. She said she was having a really hard time coming up with words. That did it! I had been put on Topomax the beginning of January for the headaches. I didn't really want to go on a seizure med just for headaches. Especially when I feel they are more related to cortisol than the POTS crap. My husband has been on so may and they all have horrible side effects. Unless they are for seizures, I'm not sure I'm okay with prescribing them. So I decided to stop in that night. I took all the pills out of my organizer and haven't looked back.
Today is the first day I haven't had at least a mild headache. It's been the same as it was before. Mild headache and stiff/sore neck. But that's better than feeling like you are going insane, I guess. My capacity to type has returned. I'm able to think clearly. My heart rate hasn't been racing quite so high. I've also not had the weird tiredness in my arms and jaw. It can sometimes take those meds a while to fully leave one's system. I'll report back in a few days.
I'm still very upset with my POTS doctor, though. I'm going to write it here in case anyone googles this. Juan Figueroa at Mayo Jacksonville. I was calling and telling him all these symptoms and he suggested I see my General Practitioner. Crock!! As a neurologist, he should have known I was having a reaction, or at least a possible reaction, to the medication he put me on. I'm disappointed at how he blew me off. I'm going to definitely tell him this when I see him on March 19th.
He did schedule me to have all the testing repeated. I almost want to go back on the Topomax before I go down there so he can see what it did to me. I want it to completely screw with all my tests. What an ass. I would do this if I weren't scared the med could do permanent damage. Ugh!
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