So four days of the decreased hydrocortisone and I'm feeling much better. I'm not sleeping extremely well, but I'd rather sleep light than sleep way too much. I need to contact my Endo and let them know of the new changes and have my levels tested. It seems my energy levels are fine. I can tell the last couple of days towards the end of the day my knees have been very sore. So I might need to take an extra 5mg at lunch. But I'm excited to decrease my hydrocortisone for the first time.
I also heard from Mayo. It was the assistant to my doctor. She was responding for him. He is not allow to communicate to patients by email (in response to my nasty gram I sent him). Wanted to know if I still have my unexplained cough (yes)? Wanted to know why I have my concerns (you don't return calls and don't seem to really care about me as a patient. I was feeling horrible. I was extremely nauseous, headaches and dizzy. My heart rate was really high but I didn't know what to do about it because I couldn't get an appointment or a doctor to call or answer.) Well you do have an appointment it's on....and so basically nothing. Whatever. I'm going to go. But from what I've been able to gather from the facebook sites and reading on my own (and changing my cortisol) I think I can manage it on my own. I do want to ask to see the heart doctor, though. The tachycardia when I'm laying down is worse and it is bothersome. I'd like for that to go away. I also told her about my arms being tired. She said, well that can happen when you start a new activity (meaning my swimming). And by tired I mean when I shampoo my hair, drive, hold a book, etc. They are just tired. Even typing now. They feel worn out. It's weird.
That's all for now.
I also heard from Mayo. It was the assistant to my doctor. She was responding for him. He is not allow to communicate to patients by email (in response to my nasty gram I sent him). Wanted to know if I still have my unexplained cough (yes)? Wanted to know why I have my concerns (you don't return calls and don't seem to really care about me as a patient. I was feeling horrible. I was extremely nauseous, headaches and dizzy. My heart rate was really high but I didn't know what to do about it because I couldn't get an appointment or a doctor to call or answer.) Well you do have an appointment it's on....and so basically nothing. Whatever. I'm going to go. But from what I've been able to gather from the facebook sites and reading on my own (and changing my cortisol) I think I can manage it on my own. I do want to ask to see the heart doctor, though. The tachycardia when I'm laying down is worse and it is bothersome. I'd like for that to go away. I also told her about my arms being tired. She said, well that can happen when you start a new activity (meaning my swimming). And by tired I mean when I shampoo my hair, drive, hold a book, etc. They are just tired. Even typing now. They feel worn out. It's weird.
That's all for now.
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