I have just recently been diagnosed with Hyperadrenergic Postural Orthostatic Tachycardia Syndrome with Dysautonomia. Do not count me as an expert. I am completely learning each day what that day will bring as far as symptoms. Because the last 8 months have really been such a drastic downhill spiral, I'm going to try to keep an online journal. I'm normally a very type A personality (ignoring the thought even now as to whether or not that has a hyphen) which has made the brain fog very difficult. I've never been a good journal-er. I'm overly critical and try to write too much. I can tell a difference in my typing and handwriting just in the last couple of weeks now so I feel the computer may be my best route.
What really sucks is I had planned on going back to college this summer. I never really understood before why it was so hard for me before. I am extremely smart. I'm a hard worker when I want to be. I even graduated high school early. Then it just seemed to get harder and harder. I couldn't ever get up before noon. When I would tell people that they would tell me I just needed to get on a schedule. Ha! Well, I would force myself up only to be passing out in class or driving. It got scary several times. I even tried to arrange my schedule so I only took night classes. But that's when all the other kids were hanging out and having fun. So then who wants to go to class then? So I scratched and clawed my way through 6 years of college with 140 hours and no degree. Quite a feat, really. Now I want to finish up and I finally have answers, but I'm getting worse!
On top of all that, I have a husband with unexplained adult onset epilepsy. It isn't controlled with medication. Over the last 6 years we have been through countless doctors for him searching for answers. The last two years we have been through 5 brain surgeries. And now they appear to be back. It's taking a huge toll on me, our finances, our marriage, him, his job, really everything.
So this journal will be a no pressure...just as I can get to it journal.
What really sucks is I had planned on going back to college this summer. I never really understood before why it was so hard for me before. I am extremely smart. I'm a hard worker when I want to be. I even graduated high school early. Then it just seemed to get harder and harder. I couldn't ever get up before noon. When I would tell people that they would tell me I just needed to get on a schedule. Ha! Well, I would force myself up only to be passing out in class or driving. It got scary several times. I even tried to arrange my schedule so I only took night classes. But that's when all the other kids were hanging out and having fun. So then who wants to go to class then? So I scratched and clawed my way through 6 years of college with 140 hours and no degree. Quite a feat, really. Now I want to finish up and I finally have answers, but I'm getting worse!
On top of all that, I have a husband with unexplained adult onset epilepsy. It isn't controlled with medication. Over the last 6 years we have been through countless doctors for him searching for answers. The last two years we have been through 5 brain surgeries. And now they appear to be back. It's taking a huge toll on me, our finances, our marriage, him, his job, really everything.
So this journal will be a no pressure...just as I can get to it journal.
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